Friday, 13 May 2016

Last minute preparations - Blue Sunday 2016

I am being extremely sensible and having a couple of enforced rest days in order to give myself the best chance of making it through, and enjoying, the weekend.

Preparations for this year's charity tea party, Blue Sunday, have been going swimmingly. I have been Chief of Delegation and have a small army of bakers at my disposal. It should please you that the baking will not be done by me! I did try to make some scones for the big day but they somehow ended up as pancakes and I felt I couldn't subject you to them afterall. I also have once again roped in the whole family to help set up on the day, distribute tea and coffee, and then wash up afterwards. So yes, I don't actually do very much on the day. Other than take all the glory.

I have been busy over the past couple of months ordering more teapots and milk jugs and sugar bowls, and I'm hoping my last minute order of serviettes and suchlike arrives today! Kitchen roll will have to do if not. I am the Queen of Online Shopping and so I haven't had to spend any energy on traipsing around supermarkets or party shops. Instead it's all being delivered right to my door and the delivery costs are definitely worth it if it means I can save up some more energy for Sunday.

I have a leaflet that I've made myself which hopefully explains a little about the origins of Blue Sunday, gives an insight into life with M.E, and helps dispel some of the unhelpful myths surrounding this illness. If you would like a copy, either for yourself or to hand out at your own tea party, just get in touch via the contact form on the blog and I will email you a copy.

I will be at Tinwell Hall in Stamford between 2-4pm this Sunday 15th May. If you would like to pop in that would be lovely! Please get in touch to let me know though so that I know to look out for you and save you a seat.

I am so touched by all of the cards, presents and messages I'm receiving at the moment to wish me luck for The Big Day. If you would like to make a donation to my JustGiving page you can do so by clicking HERE. All I'd ask for is the price you'd expect to pay for a cup of tea and a slice of cake in a coffee shop.

All I need to do now is find something to wear...preferably with an elasticated waistband!!!!

Monday, 9 May 2016

The Adventures of Anna Jones - Shifting up a gear

I, Anna Jones, former netball captain and athletic all-rounder, am now the proud(?) owner of a Kymco Mini LS portable mobility scooter. After much research and deliberation I bought it from Mobility Giant.

I can't really put it into words how this makes me feel but like always I will try.



Once upon a time I was sleeping in a bed in my parent's dining room. I was wheeled to the downstairs bathroom and had to have my hair cut off because I couldn't wash or brush it myself. 

Five years later and I am still poorly enough to have to buy a mobility scooter. Yet this most recent purchase marks my incredible progress. It means I am not bedbound and that I can even leave the house on my best days. It means that my cognitive difficulties have lessened so much so that I can control a motorised scooter safely. 

As luck would have it, the scooter arrived in time for a family reunion weekend away. I was worried I would burst into tears when Mr Tree Surgeon took it out of the car. No 27 year old wants to need one of these things. He took it for a little spin first to show me how to use it. Seeing him on it normalised it somehow and gave me the confidence to have a go myself. 

Sitting on it for the first time. In my Despicable Me pyjamas. Naturally.

As it turns out I had a job getting everyone else off it, my brothers in particular! Between me and my grandad we had two wheelchairs, a walking stick, a wheeled walker, and a mobility scooter. Plenty for everyone to play with it seems!!! For the first time in years I was able to accompany my dad on a little walk down a country lane. 

It's a family affair!

I should say though that using a mobility scooter is still exhausting. It's an incredibly comfy scooter but the bumping around and concentration took more out of me than I'd anticipated. Still, I was less exhausted scooting for one mile than I would have been walking 100 metres. 

I had to stop and cry happy tears (something that's becoming a regular occurrence!!!) when I managed to scoot along next to Mr Tree Surgeon at Rutland Water today. 

The smile probably says it all...

I have seen progress with my health in such a 'short' amount of time; progress that so many others do not get to experience. For that I am immensely grateful. I am in my sixth year and I am still ridiculously poorly. But my bad days now are what my good days used to be. 

Now I must go and get Mr Tree Surgeon to stop driving it around the living room with the guinea pigs in the basket!!!!