This is my fourth poorly birthday. I have very little memory of my 22nd. I was diagnosed a few days before and all I can remember of my 'celebrations' was sitting in a red chair under a blanket surrounded by my family. All my other plans had had to be cancelled but a few of the girls still came over with takeaway pizza at some point.
For my 23rd I had a Children's Tea Party for my birthday complete with piñata, pin the tail on the donkey and pass the parcel. I was embracing my childlike state!
Last year I had a Virtual Birthday Tea Party where my friends from across the country celebrated with me by eating cake and drinking tea via the lifeline that is the Internet.
This year I was too poorly on my actual birthday to celebrate virtually or otherwise. I won't lie, it wasn't the best. Birthdays aren't what they used to be and now I have reached the grand age of 25, my silver anniversary with Life, I couldn't help but think of how I'd imagined my life would be by this age.
But I rescheduled my birthday (you can do that you know) and last weekend my extended family came over for the day to celebrate with me as best as we could. It was wonderful! I don't know about you but when there's a buffet I seem to lose all self control, so a lot of food was consumed. It took me four attempts but I managed to blow out my birthday candles too! Quite a mean feat on a quite poorly day.
Any plans I make have to be spread out to give me the best chance of 'survival' so I've had this week 'off' ahead of celebrating my birthday with my friends at the weekend.
For me, pyjama days mean I am too poorly to get dressed; I don't have enough energy to take off my pyjamas and replace them with what I now call Real Person Clothes. As M.E. doesn't seem to have any regard to special occasions, there is every chance that when I celebrate my birthday with my friends this weekend, I may be too ill to get dressed. Rather than be prepared to cancel yet another engagement, my friends and I had an idea...
So here we are again, embracing the poorliness and not letting it deter or beat us. If I'm too ill to get dressed on Saturday it won't matter, because my friends will be dressed in their pyjamas too. And after they've left and I've inevitably crashed, I can crawl upstairs and get into bed straightaway because I'll already be ready for bed. Genius!
So I can't go out for a meal or go clubbing or go ice skating or whatever else I might have wanted to do, but I can stay at home in my pyjamas. I've even become quite good at it!
If you're free, and you want to, why not join us? All you have to do is stay in your pyjamas all day (something many of us do anyway!) but because it's a party you get to eat cake! Send me your photos via Twitter or Facebook to the blog accounts (@theslowlane_ME or M.E. myself and I) and I'll pop them in a blog post next month.